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My practice is concerned with the fabric of life, the DNA of our personal and cultural experiences. I am a processed based artist who uses a range of media to explore issues relating to genetic screening and future representations of self. 'Distinctive Not Alien' is a research and development project funded by Arts Council intending to explore how socially engaged arts practice can create opportunities for public debate about genetic screening.
Gains and Losses
22 September 2015
Loss. Loss of function, loss of independence, loss of control and perhaps loss of life is often associated with disability. Over the last week or so this was brought sharply into focus in relation to the proposed Assisted Dying Bill. I have the genetic muscle wasting condition, Spinal Muscular Atrophy that would put me into the bracket of perhaps not having more than six months to live. Indeed my parents were told that, at age two, my life expectancy was limited. I have always been...